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23 comments

Damn I was wrong, but it is good to know that they know of the genetic defect and maybe can screen for it ahead of time. I wonder if the equivalent of a baby cpap machine would work? Although I worry that it would be a lifelong struggle for these poor littles.

[–] Lumos 6 points Edited

I think an apnea monitor would work. An alarm goes off if the baby stops breathing to hopefully wake the baby and alert the parents.

A baby in my family had to have one for a few months. Technology may be even better now.

It would be interesting to know if a person would grow out of it or not.

There actually are monitors that you can currently buy that sounds an alarm when the baby's blood oxygen dips. I think one is called the Owlette, I almost bought one when my daughter was born because I was so terrified of SIDS.

Here is another one I found: https://www.mylevana.com/products/oma-sense?gclid=EAIaIQobChMI2t6Dvcrc9wIVx9aGCh3y-wmMEAAYASAAEgKh6vD_BwE

Those types of monitors are a bit of a grift though, they are all super expensive so lower income moms would be hard pressed to buy them, and there is zero liability or quality control generally attached to them.

[–] Julie92845 0 points Edited

It would be interesting to know if a person would grow out of it or not.

I'm thinking they would, since the odds of dying in your sleep as a baby are higher than in toddlers, older children, and adults. If this was a condition you didn't grow out of you'd think more older children would be dying from it.

Unless of course, the condition just takes most of them as babies and there's only a few left to die at older ages eventually.