49

23 comments

Damn I was wrong, but it is good to know that they know of the genetic defect and maybe can screen for it ahead of time. I wonder if the equivalent of a baby cpap machine would work? Although I worry that it would be a lifelong struggle for these poor littles.

Is it a genetic defect? The article didn't say genetic, just that they'd found the mechanism in the brain. I thought that fetal alcohol was a risk factor in SIDS. It's possible exposure to something (alcohol, something else, all sorts of things) could cause this defect.

My little sister died this way, and my mother was still sad about it when she died last year. She had my unbaptized sister's name added to her gravestone (I haven't seen it yet, but that's what I was told), since sis didn't get her own – sis is buried at the back in one of the unmarked sections with other babies and suicides.

I extrapolated genetic due to the fact that the article stated that the babies were predisposed to have less active levels of butyrylcholinesterase (BChE) which are encoded by the encoded by the BCHE gene, but there is a high chance I am misinterpreting. (I'm a programmer, not a biotech wizard!)

One issue with SIDS is that, historically, it is often treated as a catch all for the death of children between 1 to 6 months old, not to mention the fact that the reasons for SIDS has been flip flopped around so much. 🤷‍♀️ The problem is that too many deaths have been thrown into the same "cause of death" bucket, but these deaths are not always actually caused/instigated by, the same thing.

In my (uneducated and overall useless) opinion, a child who suffers from fetal alcohol syndrome and passes in their sleep is not a SIDS death, but child that has died from complications related to fetal alcohol syndrome. Now, FAS might have an effect on the child's active levels of BChE, but should that death be considered a SIDs death, or a death due to complications of FAS?

Sorry my brain is rambling at this point.

I am sorry about your sis and mother, I never understood not letting unbaptized babies be buried in family plots, It just seems hurtful. But I am also not of the faith.

It sounds like you know more about it than I do. I guess we'll see how the different factors play out going forward.

Questions of how one records a death are tricky. My father died of a gunshot wound (self inflicted), but he was also bipolar. From one perspective, the gunshot wound is what killed him, but from another, it's the bipolar that was the crucial contributing factor. I'd say the same kind of reasoning applies with your question about FAS and SIDS.

That is terrible that your baby sister was buried in an unmarked section of the cemetery! Is this a religious (Catholic) cemetery and the decision to bury her there made because she was unbaptized? I'm glad your mother reclaimed her baby by having her name inscribed on her own gravestone.