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Hey! Hope this is okay to post here, just looking for some general advice. I just got back from the doctor and I'm a bit freaked out, sorry if this is disjointed.

Basically I have hirsutism and I've been trying to figure out what's up. I got the results of my bloodwork today and my testosterone and DHEAS levels are high, but everything else is normal. I don't have issues with my menstrual cycle/blood sugar/weight/etc so the doctor doesn't think it's PCOS. She's going to refer me to an endocrinologist but I'm Canadian so I might be stuck on the waitlist for a year. In the meantime she's recommended Spironolactone to keep my T down.

I'm wondering if anyone's had similar issues? Or advice or links to resources or anything really. I was kind of hoping it would be PCOS because google says it's either PCOS or an adrenal tumour and PCOS sounds less scary. I'm trying to Google but it sucks because this is the only women's health space on the internet that doesn't have weird trans shit everywhere.

Hey! Hope this is okay to post here, just looking for some general advice. I just got back from the doctor and I'm a bit freaked out, sorry if this is disjointed. Basically I have hirsutism and I've been trying to figure out what's up. I got the results of my bloodwork today and my testosterone and DHEAS levels are high, but everything else is normal. I don't have issues with my menstrual cycle/blood sugar/weight/etc so the doctor doesn't think it's PCOS. She's going to refer me to an endocrinologist but I'm Canadian so I might be stuck on the waitlist for a year. In the meantime she's recommended Spironolactone to keep my T down. I'm wondering if anyone's had similar issues? Or advice or links to resources or anything really. I was kind of hoping it would be PCOS because google says it's either PCOS or an adrenal tumour and PCOS sounds less scary. I'm trying to Google but it sucks because this is the only women's health space on the internet that doesn't have weird trans shit everywhere.

8 comments

If you are worried about a possible adrenal tumor, you should push for imaging. They can at least rule that out while you are waiting to see an endocrinologist. Better to know sooner than later.

Thank you! I'll try asking for this next time I see her, hopefully there's a shorter waitlist for that.

[–] homosuperior 2 points Edited

I have a totally normal menstrual cycle, just heavy, always have done, and am very athletically built. My PCOS symptom was acne and hirsutism, and had very high testosterone (3x women my age the Dr said).

I got PCOS confirmed by trans vaginal ultrasound, lots of cysts on both ovaries. My blood work sounds very like yours, don’t think it can’t be PCOS. (My cousin also has it, also had very regular, just super heavy, periods)

Thank you, I'll try asking for this too. I had no idea you could have PCOS with a regular period.

I take Spiro for hypertension and a heart problem. Did you know it will also make your boobs grow and that TiMs take them as part of their HRT regimine? They’re one of the drugs they call “Titty Skittles.” They also smell minty!

I don’t know if I have high T, maybe I do. I did have hormonal acne as a young woman and I have had some hair growth on my face since pregnancy…would be nice if Spiro got rid of that.

Did you know it will also make your boobs grow and that TiMs take them as part of their HRT regimine?

God I know it's awful. That was literally the first thing I thought of when my doctor prescribed it, like I had flashbacks to all the anime catgirl memes 🤮

I was just about to post "Spirolactone?" on my own.

My doctor suggests it for hirsutism. From Dr. Google, it looks like it doesn't worsen mood (and can improve it) and isn't linked with weight gain, two major health concerns of mine - although it also looks as though is doesn't work ALL that well (some improvement in some patients.)

So, am interested to see what the OP/other women here have to say about it.

Confirm what others say - PCOS can exist with no real symptoms, beyond changes to hormone levels and possibly hirsutism. Mostly one reads about cases with pain, strange cycles, infertility, etc which can absolutely be effects, but not always.

OP, does your bloodwork confirm too much testosterone, or just hormone imbalances? There are a range of androgens that can cause problems for women at inappropriately high levels, and T is only one of them - excesses of others can have more benign explanations. If you are perimenopausal, hormones can particularly go out of whack. I had to deal with the Canadian healthcare system in the past, and the waits were a nightmare - I could have had the ovarian ultrasound the same day as my consult in France, to look for signs of PCOS, but was mid-heavy-period and asked to delay for my own comfort. So don't think worst-case scenarios (I don't mean that to sound condescending, it's just hard not to wonder about the worst while waiting) because one thing I DID notice in Canada is that if your doctor is worried, they'll pull strings for fast screening. If your doctor is ok with you being on a waitlist for so long, she's probably not super worried.

Another option, once the border opens up in November and depending on your location and resources, might be going to a women's clinic in the US. They often serve un/underinsured, and you should be able to get something as fairly simple as an ovarian scan without paying too much or waiting.

[–] swamphag [OP] 2 points Edited

My doctor suggests it for hirsutism. From Dr. Google, it looks like it doesn't worsen mood (and can improve it) and isn't linked with weight gain, two major health concerns of mine - although it also looks as though is doesn't work ALL that well (some improvement in some patients.)

Mine told me it would help lower my testosterone but might not reduce the hair I've already grown, but I'm not too concerned about the hair anyway, just worried about health risks from having weird hormones.

Confirm what others say - PCOS can exist with no real symptoms, beyond changes to hormone levels and possibly hirsutism. Mostly one reads about cases with pain, strange cycles, infertility, etc which can absolutely be effects, but not always.

This is comforting, thank you! My sister and several aunts have PCOS so I was really hoping for it to be that.

OP, does your bloodwork confirm too much testosterone, or just hormone imbalances?

My testosterone is at 2.17 nmol/L and my DHEAS is at 15.71 nmol/L, both over the upper limit, but everything else is normal.