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EvileineFebruary 9, 2024
Thanks for the recommendation. It took about a decade for me to get a diagnosis on my autoimmune disease. I basically had to diagnose myself. Of course, you don't want to tell your doctor what's wrong with you, so I had to do that thing of giving him clues until he came to that conclusion "on his own." I didn't want to be labeled a difficult patient, or mentally ill, or a drug seeker. Healthcare is a minefield for women.
Mystical_SongstressFebruary 10, 2024
I had to do that thing of giving him clues until he came to that conclusion "on his own.
I thought I was alone in this, and I felt so manipulative for it :( but how else do I get taken seriously? My doctor is a woman, even.
And it's so weird. I can tell her I've had the same issue (documented) for over ten years and she'll put me on the same treatment they've already tried 5 million times.
But when I literally tell her I'm actively working on losing weight through diet and exercise, she will, IN THAT SAME CONVERSATION, say "hey you're losing a lot of weight, I want to test you for cancer".
Wtaf
I feel like this is just going to depress the shit out of me. I've got fibromyalgia, hashimoto's, PCOS, vulvodynia, ibs, etc, etc. I've become increasingly disabled in the past 2 years and doctors can't tell me fuck all about any of it.
They don't know. There isn't good research on any of it. Medical science just isn't there yet on any of these issues and there are a million fucking charlatans trying to make a name and a buck off selling you "what they've learned". How is this going to be different from all the pseudoscientific natruopathic "doctors" or "wellness coaches" or, or, or. I'm losing my train of thought, but I'm fucking sick as hell and the more research I do, the less I understand. There are no robust studies with concrete answers. They have more theories than facts and it's almost as exhausting trying to heal thyself as it is to live with the busted as body you've got. Don't even get me started on the meds they've got to offer once they diagnose you. The treatment is so often worse than the disease.
I read about so many women with so many of these types of concurrent illnesses. I often wonder if all of those things are not actually a singular problem with a singular cause that's just not being looked at because women.
I think you would see a lot of yourself and your frustrations reflected in the book. Which might be a comfort. Or possibly not, depending.