I had to post this, because people are piling on to a woman who calls herself non-binary and seems to have given up on constantly cleaning up after herself. I think she has just cracked under the strain, and I can't fault her for it. It overcame me, thinking about how extreme menses can control and ruin every aspect of one's life.

I had non-stop, incredibly heavy bleeding every day for years. I don't know how to convince everyone this is real. But, you know what? I shouldn't have to convince anyone. Lord knows I couldn't convince my doctors. I have had to wear a plastic coated fabric dish draining cloth under my skirt so I could go to work. I have gouted through diapers, doubled maxi pads with super plus tampons and had blood clots escape, slide down my leg ( they are exactly body temperature, so, no, you don't necessarily feel them slithering down your leg) and plop onto the floor at work. I had to stay seated at restaurants long after breakfast ( yes, breakfast, meaning I had just showered and put on a new diaper) then had to notify housekeeping I had 'spilled' something on my chair. I never left the house without spare clothes with me, but often 1 set wasn't enough. I have missed countless opportunities for sightseeing when I travelled (swimming?! Ha!) and had stage performances undermined by fear of a bloody flood for years, and forget about after-parties. I was constantly profoundly anemic.I went to the hospital with a 500ml mason jar of clots and blood that I just collected while sitting on the toilet once, which impressed the doctor, but only got me a prescription for a higher dose of iron. I always slept on a garbage bag in hotels, or used them over diapers like giant plastic pants. (Super sweaty and uncomfortable,) but at home my sheets and mattress cover look like a crime scene. I had IUDs placed that my body flushed out -- twice. I had D & C's, blood transfusion, endometrial ablation, and cauterization. I was given Lupron (baaad psychiatric reaction. -- quit after the first shot). Was given very heavy doses of Fibristal, since withdrawn because of its danger to the liver. Oh, and I was finally given a Uterine Embolization - incredibly painful but the best thing ever -- but only after being rushed by specialty ambulance from my local hospital to a larger centre one when I had severe bilateral pulmonary thrombosis from a progesterone- based treatment I was given by one of the multitude of gynecologists I've seen. It damaged my heart and I have never regained all my lung function.
Once I got over 42 or so, most doctors didn't want to do much, because 'menopause will take care of it.' Well, it wasn't until I was 55 years old and had had the emergency embolization that the bleeding dwindled then stopped, though I still get the monthly cycles of bad nerves, back ache, breast pain, et al. But, whatever, I'll take it!
It really bothers me how much of my life these disorders have stolen from me, and how much they tainted almost all of my adult life.

Anyway, I just wanted to get this off my chest. I certainly don't want sympathy (if the site wasn't anonymous, I never would have posted because I am thoroughly Victorian) but some fury over how little medical and research attention this merry triad get would be nice. 🙂